A long rave

[Mazarita]

@eth, how awful with the experience you were having from dental treatment. It must be a relief to be free of that. Really, for me, the dental work was okay, if very uncomfortable. I just wouldn't recommend two of these kinds of appointments in one day. The one that really had me worried was the surgeon appointment. It brings up terrible memories of my earlier long ordeals for years with this illness, invasive tests, highly troublesome treatments, and specialists with harsh or cold 'bedside manners'. I've never met a gastroenterologist I really liked. To have them digging around in my body so intimately is pretty horrible. But on the other hand, the rational and reasonable part of me tells me I am doing the right thing by having my physical problems treated. I've had this increase of symptoms for three months now and it has been painful. It also may get worse if I do nothing about it.

[eth]

I hear the challenge that treatment represents @Mazarita.  But it's good that you realize the need to heal the physical.  It might even help your moods to be free of the increasing symptoms as well.

Quiet day at home for me.  The first time I've had a PHaMs visit and no appointment to get to.  We are going to spend the time doing the risk assessment, long overdue.  Hopefully there'll be some time left over to go for a cafe hit as well.

Do you have plans or are you giving yourself a well deserved do nothing day - 'me time'?

[Mazarita]

Yep, @eth, it's a day when I am dropping all expectations. Still in my nightie. May go for walk on the beach later, or not. Anything goes today. 

Hope you get in your cafe hit today too. 

[Faith-and-Hope]

💜 @Mazarita ..... glad you're feeling a little more removed from it all this morning .....

Hi @eth .... 👋

[Mazarita]

Hi @Faith-and-Hope, hope your day unfolds well. I am going offline for a while now to watch some telly. Will be back later no doubt.

@eth

[Faith-and-Hope]

Hope you have a lovely relax with it @Mazarita.

Have a dr apt with my D3 shortly. More health issues with her at the moment. All feeding into the same issue I suspect, but all I can do from here is walk along with it all.

Apart from that, a realively free day here ..... and hi from the coffee shop ..... 😊👋

@eth

[eth]

Good morning to you too @Faith-and-Hope

Catch you later perhaps @Mazarita

[CheerBear]

Hi there @Mazarita

I was having a wander around and found your post from yesterday. Sounds like you had a tricky day with your appointments. Great job on getting through them and looking after your physical health too. The stuff I have going on presents what sound like similarly yucky challenges and has also left some pretty big emotional and physical scars. It's important to work through, but hard sometimes. Sending you big hugs for it.

I'm not sure if you remember but the other day when you, @eth and I were hanging out in the very early morning hours, I mentioned a sweet spring scent about. I went on a mission to find out what it was and discovered it was coming from a few flowers in the garden. I couldn't believe how fragrant they were so I went on another mission to work out what exactly these flowers are.

The flower is called 'stock'. You might know it but I didn't as I'm only really just starting to learn about gardening stuff. They're also known as gillflower or matthiola and they're unbelievably smelly (in a good way!). Anyway, no real reason to share other than to say hi and thinking of you 😊💗

[Former-Member]

Hello Mazy @Mazarita

It's good that your relieved by your tooth being filled, it's shameful that it couldn't be tended to in the best manner.

What do they do for the flare-up of your Crohns?

My child, my Daughter, has been in a relationship for nearly 10 years now - in that time her partner has never been open with finances. She recently tried to get a loan for a car, as the one they have is old and has had many repairs, including a replacement motor and will not last much longer. Her partner has always depended on a work vehicle for transport, that has recently been taken away from him. She tried to get the loan solely in her name, she does not earn enough money. lt was suggested that her partner be included in the loan, when that happened it was instantly declined - he has been bankrupted in the past. He has a gambling problem. Although not a gambler I think my Daughter also has a problem with money. It's as if when she admits she's not good with money she seems to think that makes it better, but the only way I can see to make it better  - is to get better with money. To make better decisions. I know I can't talk, that's what gets so frustrating. Like I can see what's happening but must remain mute to the facts. I can't help thinking if he is not being open about one thing, then what else is he not being open about? I can not imagine being able to continue love for someone who continues lies for me. I don't understand how she can rely on someone, and she does rely on him financially - when she has no idea what those finances are.

[Mazarita]

Hi @CheerBear, thanks for the hugs. Sorry to hear you are going through something similar. Thanks too for the lovely flowers. Stock, I've heard of it before. What an odd name for a flower, hey? Always good to see you, friend, often thinking of you too. 

Hi @Former-Member, the main medication they gave me for Crohns when I was younger (an anti-inflammatory), excacerbated my mood swings in a huge way. I was messed up badly for years by this. The other main option they tried makes me constantly nauseous. It's going to be tricky trying to work out if anything they can give me is going to be okay mixed with my psych meds. I'm hoping there might be some different, newer medication options these days, but without knowing, it feels like I may be re-entering a nightmare time of my life. I really feel I was traumatised by past experiences and am struggling with fear and dread about it all possibly starting up again. The only other treatments I've had for Crohns were two surgeries, removing a total of 70-80cm of small intestine. 

Your situation with your daughter and her partner is difficult. I'm not sure I'm the best person to advise because I've never had children. If it was me, I imagine I would worry greatly too, but on the other hand, I might try to really keep in the forefront of my mind that my child and partner are adult people and need to be able to make their own decisions, for good or bad. For me, that might mean not always being completely available to bail them out. It's especially hard when gambling is involved. Both my parents were compulsive gamblers and it kept us on edge as a family for the whole time I lived at home (until I was 16). This may be an ongoing scenario with your daughter and partner and, as such, it does seem like you need to find some ways to find more acceptance and peace of mind for yourself with it. I wish I had better advice to offer you. At the least, know that I am hearing you and feeling for you and your daughter's family in this. Please chat more about it if you wish, rave if you like, anything that might help you release your anxieties and worries and perhaps make them less of a burden in your own head and heart. I will be here listening with love in my heart, streaming to you. Hugs!

Hi to everyone else wandering through. Hope the evening treats you well.